The active participation of patients, members of the public, GPs and medical assistants in general practice research plays an important role in the German Research Practice Networks Initiative – DESAM-ForNet. The symposium was hosted by SaxoForN, the general practice research network consortium comprising the two networks SaxoN (Dresden) and ForN (Frankfurt am Main).
At the DESAM-ForNet Citizens’ Conference held on 11 and 12 April in Frankfurt am Main, participants exchanged and discussed experiences of active patient and citizen involvement in research through a variety of formats, and developed visions for the future. As part of a World Café, representatives from patient and citizen advisory boards, as well as staff from the DESAM-ForNet initiative, exchanged views on the topic of “Active participation of patients and members of the public in general practice research?” . The results were recorded in a graphic recording.
Graphic recording showing the results of the World Café.
Participants from FoPraNet-BW (from left to right): Ria Hinken and Hans-Günther Meyer (Freiburg Citizens’ Advisory Council), Lorena Braun (FoPraNet-BW/Tübingen), Brigitte Stähle (LAG Selbsthilfe e.V.). Photo: © fotografie-schepp.de, Frankfurt
This was followed by a public discussion forum on the subject of „Involving patients and members of the public in general practice research – conditions, challenges and opportunities“ took place. Together with patients, members of the public and researchers from the DESAM-ForNet research practice networks, Dr Sarah Weschke (QUEST Centre), Dr Stefanie Houwaart (BRCA-Netzwerk e.V.), Antje Schütt (DLR Project Management Agency), Dr Martin Danner (BAG Selbsthilfe), Nina Passon (ForN Patient Advisory Board), and Stefanie Eck (Coordinator of the BayFoNet Patient Advisory Board). The roundtable discussion was moderated by Dr Jennifer Engler (SaxoForN) and Dr Christine Kersting (HAFO.NRW). A recording of the roundtable discussion is available at https://youtu.be/2GxhWS7AIRs available.
Further information on the citizens’ conference can be found here.